the nitty gritty of motherhood 21 Aug 2007 01:38 pm
Turning on a Dime
The other day I wrote about life changing with the turn of a single sentence. Yesterday it happened again.
“Your son has Crohn’s/Ulcerative Colitis. There is no cure.”
So there it is. Thousands of ulcers through out his GI Track. Lots of options for management but nothing known to cure the disease. And so we regroup.
We’ll be in the hospital for at least another week, if not much longer. We moved to a different floor for long-term, maintenance type care; it has internet in the room so I’ll be back around these parts. We will likely need to address having 17 animals at home that need care, as well as living so far away from the hospital; plans will need to be analyzed and tweaked.
Living with something is better than dying from it as far as generalities go. We are blessed to know very happy, functional people who deal with this challenge. We’ve had great visitors and are in a place with resources. In some ways a new life is beginning.
I’m starting a new feature today as well: The Random Act of Kindness For the Day. As many days as I can (I’m oh-so-bad at 365 things consistently), I’ll share a small moment of kindness that impacted my day. Where they show themselves is sometimes so surprising and always blessing.
Onward~
If you’d like to read more about our journey to live deliberately even when life throws a curve ball, subscribe to my feed.
on 21 Aug 2007 at 1:44 pm 1.Erin said …
It seems like such a quick diagnosis for something that he’s struggled with for years. I’m curious as to what the other tests will say. Give him a big ole hug from auntie, please.
on 21 Aug 2007 at 2:18 pm 2.gigi said …
But we will praise the Lord anyway for His faithfulness and goodness to us every day and He is still in the miracle business-He will meet every need, so hang in there.
Remember Gigi to Wheatie
My love
on 21 Aug 2007 at 2:50 pm 3.gina said …
I believe this is what my friend’s husband has had since he was about 18, but I’ll have to check. Hopefully it’s something that you can, like you say, live with, cope with, with some changes or something? Gosh, we’ll be praying- I know how hard it is to be in the hospital for just a few days with a little one, RMH’s are a true Godsend aren’t they? Take care- hugs to you all.
on 21 Aug 2007 at 7:21 pm 4.Queenofthehill said …
I’ve known several people who lived with this quite nicely. I know it is great to have an answer, although I’m sure that wasn’t one you would have chosen. Hang in there. W has the exact right Mommy for this job!
on 22 Aug 2007 at 7:55 am 5.Julie said …
I am so glad to read your blog again. I was wondering where you’d gone. Wow. What a blow and yet perhaps some relief too as it explains so much of what you’ve *know* for years.
Much love and hugs and care coming from my end of the world to yours.
Julie
on 22 Aug 2007 at 11:07 pm 6.Kristen M. said …
I think now that you have this diagnosis, you’d be interested in reading the book The Maker’s Diet. The author suffered from a severe case of Crohn’s disease which was leading to his death, but thanks to the diet he’s completely recovered. I think many of the book’s diet recommendations are things you already do, but many may be things you haven’t yet thought of or considered. You won’t regret reading the book! Please do check it out.
You are in our prayers,
Kristen Johanna
on 23 Aug 2007 at 7:25 am 7.Tia said …
We love The Maker’s Diet :-). It was the book I read before a friend told me about Nourishing Traditions, which Jordan Rubin also used. Right now I’m reading “Restoring Your Digestive Health”, also by Rubin and it stands out as the only written resource I’ve come across that suggests it’s possible to live without long term meds with this disease. We also have a friend who is in a long-term remission; that gives such hope! (Drugs and their many side effects is a huge, scary aspect of this).
on 23 Aug 2007 at 6:25 pm 8.Carrie said …
I’m just catching up on my blog reading. I’m praying, Tia. Do you remember Diane in TX? I think one of her daughters had Crohn’s, I *think*! I haven’t talked to her in a long while, but Karen (2nd Opinion) may still be in touch and have recent contact info. Just FYI.
(((hugs)))
Carrie